Aktualno :)

DEBRA Croatia was founded in 1996 with the goal of getting families with EB member together and organizing help and support for children affected by EB. Debra’s activities are aimed towards improvement of health and social security.

*Epidermolysis bullosa (EB) is a very rare severe genetic disease that apart from skin problems makes complications and causes many side effects on other organs (eyes, digestion system, locomotion system etc.). EB requires a multidisciplinary approach and systematic monitoring of the patients. Most of the EB sufferers are 80-100 % disabled only after few years of life.

Epidermolysis Bullosa* means fragile and sensitive skin like butterfly wings. Everyday life with EB means new injuries, new dressings, pain and surgical interventions. EB in its most severe forms means constant dependence, help, care and support for the sufferers and those caring for them.

In order to provide better and adequate every day assistance to people with EB, we have organized Debra Centre. Our Centre is behind Children’s Hospital, and consists of office facilities (as education centre and distribution centre) and accommodation (two-bedroom apartment) for families while visiting Hospital or just for various workshops and socialization.
The main current activities are providing services in the Croatia to improve the quality of life of people with EB via our team of specialist and social care managers.
Debra also tries its best to provide maximal assistance and support in procurement of health care products and overcoming of everyday difficulties (nurse/social worker) for whole family.

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13. - 31.01.2012.
"DANI ORHIDEJA ZA DJECU LEPTIRE"

Vrtni centar Kalia, drugu godinu za redom organizira humanitarnu akciju pod nazivom
"DANI ORHIDEJA ZA DJECU LEPTIRE" koja će trajati od
13. 1. do 31. 1. 2012.god.

Kupnjom orhideje donirate 1,00kn udruzi Debra.
Akcija humanitarne kupnje trajat će cijelu godinu!!!

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Sva protekla događanja možete pregledavati pod linkom arhiva.